“My TriFIT Journey”: A study summary report for child and adolescent participants

Abstract

This report card was developed as part of the TriFIT study, which examines the effects of TRIKAFTA on health and well-being in children and adolescents with cystic fibrosis. It provides each participant with a personalized summary of measured outcomes, including body composition (muscle, bone, and fat), aerobic fitness, physical activity, and quality of life. The results are presented in a clear and accessible format for participants and their families, without comparison to other participants. The purpose is to support understanding of individual progress and highlight each participants contribution to the TriFIT study. Sharing results in this way helps make research findings meaningful to participants, turning study measurements into practical, easy-to-understand information about how they changed over a year.